"We have this hope as an anchor for the soul., firm and secure. It enters the inner sanctuary behind the curtain," Hebrews 6:1
"Be joyful in hope, patient in affliction, faithful in prayer." Romans 12:12
Having lunch today!
"As for me, I will always have hope; I will praise you more and more." Psalm 71:14
Today has been much better for Amber! We are so proud of her will to fight and her strength!
Yesterday Amber tolerated the cpap mask all day and she slept beautifully all night. She probably got the best and biggest amount of sleep she has had in months, it was wonderful to see.
Today we decided to see how she would tolerate her cannula again.
I have to say I was not optimistic, I didn't want to rush things but Luke was adamant and we tried it.
She has done amazingly well! They have her on about 3.5 liters so a little more than at home but she has had so much energy and has been laughing all day!
Amber's electrolytes were finally on the lower end of normal after yesterday's blood test. They decided to give her a day off of labs and check it in a day or so just to make sure they are staying up. We aren't sure what they are doing with her morphine, she's still on a lower dose. We are going to put her on the cpap again tonight and tomorrow night just to give her some extra support. The plan is to try the cannula on Wednesday night and giver her the cpap if she needs it. The pressure in the cpap really helps her open up the air sacs in her lungs. My feeling is, it helps give her the oomph she needs to keep going for the day. It also takes a lot of stress off of her heart. Which is why I'm so apprehensive about moving her off of it completely.
Our goal is to get home by the end of the week or early next week. We are really focusing Amber regaining some strength, making sure everything is set and we are comfortable with how she is and caring for her.
It's crazy to think that we will be bringing her home more fragile than she was before.
We are taking one day at a time and thanking God for each new day!
"Just when the caterpillar thought the world was over, it became a butterfly" ~ Proverb