Return Of The Zombie Mom

I really did mean to blog again before the NSTAR walk!!

 Unfortunately for you this means I have a lot to catch you up on. 

 We had a wonderful stay in PA. All of the pictures in this post are from our stay in PA but these are not all our pictures!  We were able to see a lot of family and have a lot of fun! Amber and I were supposed to stay for two weeks and unfortunately had to cut our trip a few days short because Amber got sick again. 

 We brought Amber to her pediatrician almost as soon as we came home and were told that she had pneumonia in both lungs. This was really scary because we're constantly told that an un-treatable pneumonia is most likely the way she will go. Thankfully since we caught it so quickly the antibiotics were able to do their job pretty much right away.

 Amber was back to her almost her normal self quickly but her lungs have taken a very long time to clear out. She finally sounded "alright" last week and is totally back to herself this week.

 We've finally started home nursing!! We've had a nurse during the day the last two days and I've loved it! I've been able to bake Luke's birthday cake stress free, get laundry done, do some much needed re-organizing to Amber's binders and blog! 

 Once "training" is done we'll have a nurse for 2 nights and 2 days. I know I've really been fighting bringing them it but it will be nice to have a little bit of a break, be able to sleep and get some much needed things done around the house. It will especially nice to have them the next time Amber is sick.

 I think that's all other than a few nightmares with our oxygen company and a few of Amber's prescriptions. I do have to say I'm not quite a Zombie Mom at the moment. This last round of Amber being sick was really rough though I had totally lost my mind hence why I wasn't blogging and I was putting the phone in the fridge. Thankfully Amber has been sleeping well for almost a week now (of course since we're going to be bringing someone in) and I can slightly turn my brain off when the nurse is here. 

 I do have a bunch of posts "in the pipeline" and I promise the next one will be about the NSTAR let's just say it went amazingly well!! Amber is appointment free until July!! We're praying that she can stay healthy she's been off the antibiotic for a week now. Last time she only had a week off before she got sick again, she's got to stay healthy so she can be a flower girl for July 2!!

I do have to say... YAY BRUINS!!!!!( Sorry to our canadian I-Cell families.)

Happy Birthday Blog!!!!

Can you believe it! I almost missed it myself! Today is my blogs birthday! I feel like we should do something special. But what? How 'bout my first post ever;

"This is going to be my first official post! I started this blog to document the last chapter of my pregnancy, the beginning of mommyhood and the joys and trials of being a domestic diva/new wife! I'll be covering topics like my growing bump, trying to set up a nursery, woes of cleaning and cooking, life with a new baby and some other fun/random things that happen to me!

I'm not that computer savvy and I'm hoping this blogging thing get easier (and better looking) over time!"

Don't you wish they were all that short and sweet. This blog is hardly anything I thought it would be when I started it. At the time we had no idea what type of an adventure Amber would bring us on. Looking at her now, all tangled up from playing her oxygen cord, blabbering away at me I wouldn't have it any other way! 

Not so much in honor of the blogs birthday but because it's what I do best we're going to play catch up!

That's not even half of her records! I stayed up late Tuesday night reorganizing all of Amber's early intervention and medical records. The new binders came out really nice! Her C.C.S. appointment went really well! They are scheduling her a sleep study, new orthopedic appointment, trying to get us to see our pulmonary specialist sooner and setting us set up with a car seat specialist. That's just the beginning we probably won't see a lot of other new specialist until the fall just because we want Amber to have some time on her new g-tube feedings to see how she's going to grow and develop. We're going to end up seeing a developmental neurologist to see if they can tell us if her muscle will get any stronger and we'll probably end up seeing a craniofacial (sp?) specialist about Amber's mouth. Oh and we'll get another swallow study at that point too. We'll be going back in three weeks, maybe every three weeks for check ups to see how Amber is doing and if anything new comes up. I really like them they looked her over head to toe, said who we should see and have happen right now, in a few months and then long term depending on how things go. I wish we could have been plug in with them sooner and I'm really looking forward to seeing what else they can do for her.

And because I missed Wordless Wednesday yesterday (our appointment was 3 hours long not including travel time!) here are some pictures :

Amber's 1st trip to the ocean! 

Getting her feet wet

She didn't like it. I can't blame her it's Maine water so it's freezing!!

Amber got a package from her PA Grammy Tuesday

She loves it! Thank you Grammy!

Reading the note.

I think that's all for catching up! 

Oh yes, this is the face Amber has on almost 24/7 lately. Dutifully practicing her raspberries!

Now in honor of this blogs birthday I'd like to hear from my readers! What would you guys like to hear more of or more about. I'd love to answer any questions you have. It doesn't matter how random it is I'd love to hear from you! 

If you're wondering how to leave a comment it's really really easy! 

1) Click on comments below (there may or may not be a number in front of it)

2) Write your comment or question in the empty box below "Post A Comment"

3) Under the box it says "comment as" and you have to pick something 

      The first is a Google account, so if you have g-mail or a blogger account you can pick that. If you want   

      you can set up a Google account but I won't go into that right now.

     The next 5 choices are other blogging/journal sites, if you have an account set up with them chose that.

     The next is Name/URL that would be if you wanted to leave your name and your web page as your id

     The last is anonymous and that is probably the easiest to chose! And leaves you no excuse for not leaving         

     a comment! 

4) Finally click post a comment. You probably have to fill out a word verification thing but then it'll post!

Thanks to everyone who reads this! Can't wait to hear from you!!!!