As Amber changes this blog seems to change with her.
What started as what I thought would be your run of the mill mom blog has turned into something quite different.
The goal is still to capture our daily life for family and friends who can't be near us.
A glorified (public) baby book or should I say baby brag book!
It has also become an educational tool. An easy way to explain to everyone Amber's medical needs.
Thinking back to before we had Amber's diagnosis we were constantly looking and hoping for any Dr to recognize something about Amber. I can still remember the feeling when her metabolic Dr.s told us her features weren't out of the norm for them.
Maybe that's one of the reasons why I keep up on my blogging for the other I-Cell families and parents who searched like we did to find some kind of comfort in similarity.
Which brings me to the current changes.
First of all our title/name has changed. From "And Baby Makes Three" to "Amber's Adventure"
This is something I've been thinking about changing for a while now.
Please note the URL has not changed, it is still mommaskye.blogspot.com!
Second I've added "Coming Events" to the left sidebar.
Now you can keep up with what's going on!
Third, I've changed around the labels (also left sidebar).
Now you can easily find more specific things about Amber like, her g-tube or previous hospital stays.
I think like any blog it's still a work in progress and I'll probably be tweaking how it looks over the next week or so. Feel free to let me know what you think of it or what you'd like to see or hear about!
Also just so you know what's going on with Amber she had another rough night and most of the day. Her fever got extremely high but once it broke she seemed a lot better than she has been.
I'm hoping that she'll just keep getting better from here on out.
I'm also not sure why my blog reposted the post below this one, it's from before Amber was born!!