The weekend nurses and Dr's are gone. But our day nurse was amazing. Amber seems a little more like her usual self. She even ventured to eat almost a full 4oz jar of bananas! Apparently though the body uses oxygen to digest so she needed her oxygen turned up to .4 afterwards. In general she still is having periods of distress and her oxygen will have to be turned up a little every once and a while.
At this point they've stopped discussing weaning for right now. We're supposed to be seen tomorrow by the pulmonary specialist who follows us here. It sounds like we're not going any where for a while. Hopefully if we can get her down to a lower amount of oxygen and if she's having less periods of distress we'll be able to take her home with oxygen.
It's amazing how much better one can feel after a shower! I finally got one today. We tried to give Amber a bath but it didn't work to well. The poor thing really needs a good hair washing.
I'm sure theres more to update about but I just can't think of it at the moment.