Our favorite day nurse was back! When they tested Amber without oxygen this morning she dropped into the low 80's but brought herself up to the mid 80's! She is still no where near ready to be off the oxygen though and they did not even try to wean her off today. She gave Amber a lovely bath and Amber smelled so good and her hair looked so nice! She's had a lot of diarrhea today but they said the antibiotic she was on can do that. They've been pushing solids to help get her poop thicker. She ate 4 oz of peaches today and almost 4 oz of bananas. The bad news is she just majorly threw up and had diarrhea on the two of us. I'm thinking it was over eating since she doesn't have a fever.
We were visited by a multitude of residents and med students (we're at a teaching hospital) today when the floor pediatrician came in. They bombarded us with questions about her sickness, general health history, genetic testing and anything else they could think of. After words I believe they had a session discussing her very much like an episode of House because one came back with theories and things we should tell her Dr's to test her for. They did inform us though that the testing they did when we first came back positive for a common virus. The virus usually causes croup but thankfully it's only cause Amber to have something like bronchiolitis. This means she doesn't have to be on antibiotics anymore.
We were also visited by the pulmonary specialists resident. He said that him and the specialist looked over Amber's recent chest x-ray (the one from Friday night) and it looks like her hernia has gotten worse and is now in front of her lungs. This is bad news because she doesn't have a lot of room to breath to begin with and coupled with the respiratory infection and intestines in front of the lungs she's really have a hard time breathing now. This explains why they are having such a hard time getting her off of the oxygen and why everyone is so intense of discussing her hernia. I've got an e-mail off to the guy in Boston who would be fixing that so we'll see how it goes. The bad news is the pulmonary specialist himself did not show up today. This mean we'll be spending at least another day here because he is the one that will tell the pedi floor team if she should still be watched for the virus or if she can just be sent home with oxygen to recoup at home. This is the second day he's stood us up so hopefully he actually comes tomorrow.
The best news of the day is Amber SMILED!! Finally finally finally! She really seems a lot better today her color is back and some of her energy. She was playing and acting more like her usual self. This really gives us hope that we'll be able to bring her home soon and get her some sun! Oh and she's gone back to refusing to go to bed lol so she must be feeling better!
Now for something that will make you laugh. In our tiny room is a pull out chair with a mattress smaller than a twin. The hubs slept on one comfortably all by himself when Amber was born. The last couple of night the two of us were supposed to be taking turns sleeping on it and an awful rocking chair. Well my hub is a bed hogging troll! So sleep for me wasn't going so well and sleep for him wasn't going so well because I would constantly poke him till he woke up. This is where being two tiny people comes in handy! Last night we both squished onto this tiny one man bed and actually had a very good nights sleep. The nurses and Dr's gave us very funny looks, I'm sure they've never seen two people actually try and successfully sleep on one of those!
Do you know what else made my day today! I logged onto my e-mail and saw a message from a mothers site that I use saying I was the winner of a resent giveaway! I had completely forgotten that I'd even entered. This is what I won. I can't wait till it comes in, of course it will say Amber and her birth date.
It's had it's ups and downs but I'd like to say overall it was a good day! Tomorrow I'm going to try something a little different. I hope it will something like a weekly treat for you all so you'll have to let me know what you think.
Have a great night!