Amber is doing well but I think the two of us are really stressed out. Last night we had a thunderstorm and lost power. I flew out of bed thinking her oxygen wasn't going to be working....her oxygen doesn't run on electricity so she was fine. Her pulse ox monitor does but thankfully it has a good battery power reserve. Her regular monitor isn't set up to switch to batteries so needless to say I did not go back to sleep until the power came back on an hour and a half later. The other stressful part of the night was that we had our air conditioner running which made it almost impossible to hear her in the monitor. We're still trying to figure out all the in's and out's of using her new equipment and what works best for us.
We had a really good visit from the respiratory therapist and a visiting nurse. Hopefully tomorrow we'll get set with a few more things we need.
As of right now that's all I can think of. We have a lot of things to get caught up on and a lot of moving around to accommodate the big oxygen tanks. Hopefully tonight goes well so we're revived enough to get what we need done!