This didn't come out great but it was so cute to watch her playing
Amber "Thank you Grampa for the balloon and kitty!"
Amber had a rough night and a rough morning, she had everyone very concerned but I'm pleased to say she's doing much better! The bad news is they're going to keep us longer. How much longer I'm not sure. They are moving us (again!) hopefully this is our last move. I'm excited about it because it's supposed to be a big, single patient room on a single room only floor! After last night we both need a good nights sleep.
They're transferring her care to Complex Coordinated Care's inpatient floor and they will be handling her from now on. They're team will evaluate her and decide what they want to do from there. Depending on what they think they might keep us for 24 hours or longer.
We really need to figure out what to do about her feedings. The team we have now is doing g-tube feeding as the primary feeding, this means she's hardly breastfeeding. It's really frustrating because she's obviously getting too much to eat this way and she still wants to nurse on top of it. This is also not what we agreed on when we said ok to the g-tube.
I'm not sure if they'll try to do oxygen weaning again, it didn't go so well last time but I guess they expected that. She really needs to wait another week or so before she can be weaned. I also don't know if they will want us to try again at home or do it in the hospital.
Supposedly this new team will be able to set us up with some other testing we've been waiting on and hopefully get her Dr's to communicate better.
My brain at this point is totally fried from hearing Amber and all the other babies constantly screaming!