In the ICU before she was off the vent.
We came back from dinner and lifted her blankets to find the nurse had moved her toy next to her to keep her snuggled!
It was really funny to see
chilling with daddy
Amber is doing so much better! She is only attached to the oxygen now, just like at home, she no longer has any I.V.'s or leads attached to her. She does have the blood pressure cuff on and off because it has still not come down to a number they are comfortable with, it would be a great number if she were an adult. We haven't heard if they will increase the dose yet or not.
Things are slowly moving for us to be sent home. We've had a lot of training with the G-tube and I think we're pretty comfortable with it. It will be the same company that delivers our oxygen. I wasn't thrilled about this but we've worked out some kinks with the company reps here so hopefully when we go home the oxygen and g-tube things will be all set and not stressful. We're still waiting for Complex Coordinated Care to come visit us. This will be a person that will be doing the job I do now with coordinating who Amber sees, who she needs to see and when she needs to see them.
Yesterday they told us we would go home today, today they're telling us we'll go home tomorrow. So I'm not really sure when we'll go home, I'm planning on tomorrow but I'm not getting to excited yet. Although today I feel more comfortable with the news of going home than I did yesterday.
Hopefully my next update will be from home!!