The good news is after talking to our main geneticist it sounds like her hernia is not that bad and this will be a one time permanent fix. Other than causing her difficulty to breath the hernia has not impacted the growth of Amber's lungs! It's yet to be decided if the hernia is the main cause of Amber's chest shape and poor weight gain. It could be a magic fix or it could just puzzle them more. The Dr did say that its almost guaranteed that it will fix her breathing issues. Our anesthesia fears have not been put to rest yet, especially after being informed that they will be deflating her lungs for the procedure. We still have a lot of unanswered questions that won't be addressed until we have our meeting with another geneticist who specializes in diaphragmatic hernias, the surgeon and the anesthesiologist.
On x-ray news the skeletal survey went well. It was shorter than last time and they did not have to retake any of! Thanks to daddy who has mad skills :) The full reports on her chest x-ray and skeletal survey are not in but so far nothing else bad has been found. The only new oddity with her is the rib bones look wide and spread out......yeah they have no idea what this means or if its a bad thing.
Crazy stuff but we're hanging in there. Amber has been in the best mood the last couple of day its been so much fun! Can't wait for this weekend!