I will never, ever, ever let Amber have another sleep study in Boston! Maybe, but only if it's absolutely necessary, I let her have one at their satellite location in Lexington.
If you haven't notice I'm not completely happy with how the sleep study went.
The sleep study itself went alright I guess. Amber actually slept through the night. She only startled awake twice on her own and not to the scary extent that she usually does at home. She did do her usual snoring and gasping though. I'm hoping things weren't too different and that we still get good answers from it.
What I didn't like was the technician we had doing the test. To say he had no social skills is an understatement. He was like talking to a rock. He never told me his name, asked if I needed any help or anything along the lines of even a cold welcome. That didn't bother me too much but how he treated Amber really got me going! She had to have 15 electrodes on her head, five on her face, five on her body and two on each legs. She also had to have a weird butterfly like band-aide under her nose to monitor breathing stuff, a special cannula to see how much oxygen was coming out and a carbon dioxide sensor. All the sensors on her head and face had to be glued down with some really nasty smelling stuff. He was so awful to her the whole time he was putting them on. Treating her like a rag doll, flopping her around to put them on. I understand she isn't easy because she doesn't hold any of her weight and she is like a doll to move around but she is a human and it isn't safe for her to be moved like that! She was choking, gagging and sputtering because of it. I was so mad and no matter how many times I told him to stop, give her a break and not to do that he just didn't care, he wouldn't even let me help him. She was also off her oxygen for most of this, it was really scary to see her color change and to watch her work so hard. Which he also didn't care about because the first part of the test she wasn't going to have oxygen (so they could see if her brain told her body to breath etc). The whole experience was just terrible and I can't believe they let people like that work with children!
We won't have the results of the test for 2 weeks. I'm not even sure how long she was off the oxygen (I know it wasn't long) or what amount she ended up on.
The red marks on her head are from the marker they use to make where the sensors go. I snapped it quick before I readjusted her oxygen cannula, she looks so different without it!
This week hasn't been so great, hopefully next week is better I don't think we have any appointments!